Rare Disease Day 2022

Graves Disease (we have topics on January thyroid disease awareness month) Infective Endocarditis (we have topics on Infective Endocarditis and Infective Endocarditis and Blindness Raynaud’s Disease (we have a topic on Raynaud’s Disease Awareness) Rare Diseases is something that is within our family. Unfortunately within many families worldwide…… Please see Rare Disease Day 2022 which […]

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Rare Disease Day 2021

When my sister and I became aware of this day, right away we knew we needed to make this a topic. This is what we are all about, sharing our story and trying to spread awareness of unknowns. The reason why this awareness day is so important to us is, and why we feel so […]

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