Rare Disease Day 2022

Graves Disease (we have topics on January thyroid disease awareness month) Infective Endocarditis (we have topics on Infective Endocarditis and Infective Endocarditis and Blindness Raynaud’s Disease (we have a topic on Raynaud’s Disease Awareness) Rare Diseases is something that is within our family. Unfortunately within many families worldwide…… Please see Rare Disease Day 2022 which […]

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February Awareness Month 2022

We have decided to do a topic for the month as there are many awareness days/weeks and months within this month. There are some that we will do separately, but as we want to highlight all of the ones, we are aware of, we are combining them into one topic…… Please see February Awareness Month […]

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Rare Disease Day

When my sister and I became aware of this day, right away we knew we needed to make this a topic. This is what we are all about, sharing our story and trying to spread awareness of unknowns. The reason why this awareness day is so important to us is, and why we feel so […]

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